Autori: M. Mihailov, M. Serban, S. Arghirescu, M. Puiu;

Editorial: nature publishing group, European journal of human genetics, Volume 15 Supplement 1 June 2007, p.64, 2007.

Rezumat:

Introduction. Haemophiliacs often have to adjust their aspirations, lifestyle and employment options. In Romania and in other developing countries, lack of adequate therapy generates fear and uncertainty. Patients with high complications rate may develop psychological disorders.
Aim of the study was to evaluate frequency and type of psychological manifestations in haemophiliacs.
Material and method. Our study group consisted of 234 haemophiliacs registered and treated in Haemophilia Center Timisoara. We analyzed psychological complications according to haemophilia severity and patients’ age.
Results. In our patients, psychological complications appeared in 16.24% of cases. 31.58% of patients with psychological complications presented associated psychological manifestations. In 4.27% of haemophiliacs with psychological manifestations neuro-sensitive-sensorial complications were noticed.
The majority of patients with psychological complications (81.6%) had severe haemophilia. High frequency of haemartrosis in these patients, frequent and long hospitalizations, high chronic arthropathy rate which produces disability and affects body image are important factors of psychological manifestations appearance. Most patients with psychological complications (76.3%) were from other counties, major deficiencies in haemophilia care representing a permanent distress. Mean age of patients with mental complications at diagnose was 14.2 (SD=9.840. Opioid abuse (12 cases) was the main complication and was signalized only in adults, the explanation being that in this age group, most of the patients present severe chronic haemophilic arthropathy, which causes chronic pain and disability.
Discussions and conclusions. Despite all difficulties, it is essential to diagnose and treat psychological complications in haemophiliacs, presence of a psychologist in the multidisciplinary haemophilia care team being indispensable.

Cuvinte cheie: hemofilie, psihologic, complicatii // haemophilia, psychological, complication

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